Raising the profile of prostate cancer

Building relationships with decision makers

Throughout the year, we talk to politicians and other decision makers about prostate cancer and our campaigns. We make the most of opportunties like Movember and party conferences to build relationships with politicians.  

Working with others

We work with other groups to strengthen our voice and calls for change. If you know any groups that you think we should be working with, please email policy@prostatecanceruk.org.

The Prostate Cancer Advisory Group (PCAG) brings together health professionals, policy makers, charities and people affected by prostate cancer three times a year to discuss developments in prostate cancer treatment, care and policy. It has an important role in advising on the development of policy, and in facilitating collaboration between the different sectors represented on the group. Read the minutes from the October 2013 meeting and the January 2014 meeting.

Working together with Tackle prostate cancer (the working name of the Prostate Cancer Support Federation) makes our campaigns stronger. We have been campaigning with Tackle to get enzalutamide approved without restrictions. We are also able to work with and hear from lots of their support group members – reaching many more people affected by prostate cancer. Both organisations are also members of the Prostate Cancer Advisory Group, ensuring that the voice of people affected by prostate cancer is heard by decision makers.

Our head of Policy and Campaigns, Drew Lindon, now chairs the Patients Involved in NICE (PIN) group. This is a coalition of over 80 patient organisations who use their combined knowledge and experience to ensure that NICE (the National Institute for Health and Care Excellence) puts patients at the centre of its work.

We sit on the steering group of the Cancer Campaigning Group, a coalition of cancer-related charities in England that enables members to speak and campaign with a single unified voice.

We are a member of the Scottish Cancer Coalition, a partnership of 19 organisations dedicated to improving cancer services and outcomes for patients in Scotland and promoting research and prevention.

We recently joined the Public and Patient Interest Group which feeds into the All Wales Medicine Strategy Group. The All Wales Medicine Strategy Group assesses medicines and decides if they will be available on the NHS in Wales.

We are members of the Stakeholder Group of the All Party Parliamentary Group (APPG) on Cancer. The APPG on Cancer was founded in 1998 to keep cancer at the top of the political agenda. It brings together MPs and Peers to help improve cancer services, and organises the annual Britain Against Cancer conference.