Building relationships with decision makers
Throughout the year, we talk to politicians and other decision
makers about prostate cancer and our campaigns. We make the most of
opportunties like Movember and party
conferences to build relationships
Working with others
We work with other groups to strengthen our voice and calls
for change. If you know any groups that you think we should be
working with, please email firstname.lastname@example.org.
The Prostate Cancer Advisory Group (PCAG) brings
together health professionals, policy makers, charities and
people affected by prostate cancer three times a year to
discuss developments in prostate cancer treatment, care and policy.
It has an important role in advising on the development of policy,
and in facilitating collaboration between the different sectors
represented on the group. Read the minutes:
January 2014 meeting
May 2014 meeting
Working together with Tackle
prostate cancer (the working name of the Prostate Cancer
Support Federation) makes our campaigns stronger. We have
been campaigning with Tackle to get enzalutamide approved without
restrictions. We are also able to work with and hear from lots
of their support group members – reaching many more people
affected by prostate cancer. Both organisations are also
members of the Prostate Cancer Advisory Group, ensuring that
the voice of people affected by prostate cancer is heard by
Our head of Policy and Campaigns, Drew Lindon, now chairs the Patients Involved in
NICE (PIN) group. This is a coalition of over 80 patient
organisations who use their combined knowledge and experience to
ensure that NICE (the National Institute for Health and Care
Excellence) puts patients at the centre of its work.
We sit on the steering group of the Cancer Campaigning Group, a
coalition of cancer-related charities in England that enables
members to speak and campaign with a single unified voice.
We are a member of the Scottish Cancer
Coalition, a partnership of 19 organisations dedicated to
improving cancer services and outcomes for patients in Scotland and
promoting research and prevention.
We recently joined the Public and Patient Interest Group
which feeds into the All Wales
Medicine Strategy Group. The All Wales Medicine Strategy
Group assesses medicines and decides if they will be available
on the NHS in Wales.
We are members of the Stakeholder Group of the All
Party Parliamentary Group (APPG) on Cancer. The APPG on
Cancer was founded in 1998 to keep cancer at the top of the
political agenda. It brings together MPs and Peers to help improve
cancer services, and organises the annual Britain Against Cancer