The Prostate Cancer Charity releases results of ground breaking survey on quality care in prostate cancer

The Prostate Cancer Charity today released the results of its ground-breaking survey which asked men with prostate cancer how they feel about the care and support they receive.

The Prostate Cancer Charity today released the results of its ground-breaking survey which asked men with prostate cancer how they feel about the care and support they receive.

We wanted to build up a picture of the care that men with prostate cancer want and need, wherever they are in the country.  Over 600 men with prostate cancer completed the survey, which included questions about all aspects of care from diagnosis through to treatment and living with and after the disease. 

The results showed that overall, most men (84%) felt they had a positive experience of prostate cancer treatment and care.  However, over a quarter of men (27%) felt that the provision of good quality information and support was not adequate for their needs. Furthermore, although most men (86%) reported that they had experienced side effects as a result of treatment, almost one in three of these men (31%) said that they received too little aftercare to treat their side effects.  Over three quarters of men (77%) also stated that the coordination of care and good communication between healthcare professionals was extremely important to them.   The results also show the vital role clinical nurse specialists (CNS) play in ensuring men across the UK receive good quality care.  Three quarters of men (76%) told us that being given the name and contact details of a CNS at an early stage was 'very important' to them.

Sarah Cant, Head of Policy and Campaigns at The Prostate Cancer Charity, said:  "We would like to thank all the men who took the time to take part in our survey. Their views and experiences have been invaluable in helping us develop a picture of what care and support men with prostate cancer want and deserve. It is very encouraging to hear that the majority of men with prostate cancer who completed the survey had a positive experience of treatment and care. However, the survey results also show that more must be done to ensure all men have the information and support they need. 

"We are extremely concerned that the existing standards for prostate cancer care in the UK, where they exist, don't reflect men's needs.  That's why we are developing our own standards of quality care, which have men at their heart.  We will work in partnership with men and healthcare professionals, and together improve prostate cancer services across the UK."