References to sources of information used in the production of When you're close to a man with prostate cancer: A guide for partners and family

Getting information about prostate cancer
Feltwell, AK. Rees CE. The information seeking behaviours of partners of men with prostate cancer: a qualitative pilot study. Patient Education and Counselling 2004; 54(2): 179-85.

Davison BJ, Goldenberg SL, Gleave ME et al. Provision of individualised information to men and their partners to facilitate treatment decision making in prostate cancer. Oncology Nursing Forum 2003; 30(1): 107-114.

Jones RA, Taylor AG, Bourguignon C et al. Family interactions among African American Prostate Cancer Survivors. Fam Community Health 2008; 31(3): 213-220.

Weber BA, Sherwill-Navarro P. Psychosocial consequences of prostate cancer: 30 years of research. Geriatric Nursing 2005; 26: 166-175.

Sinfield P, Baker R, Ali S et al. The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England. European Journal of Cancer Care 2012; 21: 527-534.

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Prostate Cancer UK. Hampered by hormone therapy survey 2009.

General Medical Council. Guidance for doctors - confidentiality 2009. http://www.gmc-uk.org/static/documents/content/Confidentiality_0910.pdf. Accessed February 2013

Supporting someone with prostate cancer
Jones RA, Taylor AG, Bourguignon C. Family interactions among African American Prostate Cancer Survivors. Fam Community Health 2008; 31(3): 213-220.

Couper J, Bloch S, Love A et al. Psychosocial adjustment of female partners of men with prostate cancer: A review of the literature. Psycho-Oncology 2006;15: 937-953.

Couper JW, Bloch S, Love A, et al. The psychosocial impact of prostate cancer on patients and their partners. Medical Journal of Australia 2006; 185(8): 428-432.

Arrington M I. "She's right behind me all the way." An analysis of prostate cancer narratives and changes in family relationships. Journal of Family Communication 2005; 5(2): 141-162.

In-house survey - partners, family and friends information and support needs

Sarason BR, Sarason IG and Pierce GR (1990) Traditional views of social support and their impact on assessment. In  Sarason BR, Sarason IG and Pierce GR (eds) Social support: An Interactional View. New York, Wiley.

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Koffman J, Morgan M, Edmonds P et al. The greatest thing in the world is the family': the meaning of social support among Black Caribbean and White British patients living with advanced cancer. Psychooncology 2012 Apr; 21(4): 400-408.

Living with prostate cancer - Prostate Cancer UK online snapshot survey, Feb 2009

Sinfield P, Baker R, Ali S et al. The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England. European Journal of Cancer Care 2012; 21: 527-534.

Looking after yourself
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Kornblith AB, Herr HW. Quality of life of patients with prostate cancer and their spouses. Cancer 1994; 73(11): 2791-2802.

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Burke, MA, Lowrance W, Perczek R. Emotional and cognitive burden of prostate cancer. Urologic Clinics of North America 2003; 30: 295-304.

Resendes LA, McCorkle R. Spousal responses to prostate cancer: an integrative review. Cancer Invest 2006; 24(2): 192-198.

Segrin C, Badger TA. Psychological distress in different social network members of breast and prostate cancer survivors. Research in Nursing and Health 2010; 33: 450-464.

Bruun P, Pedersen B, Osther P et al. Prostate cancer - friend or enemy. Part two, the daughter. International Journal of Urological Nursing 2010; 4(3): 111-117.

Couper J, Bloch S, Love A, et al. Psychosocial adjustment of female partners of men with prostate cancer: A review of the literature. Psycho-Oncology 2006; 15: 937-953.

Rosenberg CJ. Faculty-student mentoring. A father's chronic sorrow: a daughter's perspective. Journal of Holistic Nursing 1998; 16: 399-404.

Couper JW, Bloch S, Love A, et al. The psychosocial impact of prostate cancer on patients and their partners. Medical Journal of Australia 2006; 185(8): 428-432.

Sjovall K, Attner B, Lithman T et al. Influence on the health of the partner affected by tumor disease in the wife or husband based on a population-based register study of cancer in Sweden. Journal of Clinical Oncology 2009; 28: 4781-4786.

Arrington M I. "She's right behind me all the way." An analysis of prostate cancer narratives and changes in family relationships. Journal of Family Communication 2005; 5(2): 141-162.

Manne S, Badr H, Zaider T, et al. Cancer-related communication, relationship intimacy, and psychological distress among couples coping with localised prostate cancer. J Cancer Surviv 2010; 4: 74-85.

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Feltwell AK, Rees CE. The information seeking behaviours of partners of men with prostate cancer: a qualitative pilot study. Patient Education and Counselling 2004. 54(2): 179-185.

NICE. Supportive and palliative care guidance (2004) http://www.nice.org.uk/CSGSP. Accessed February 2013.

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Badr H, Taylor CLC. Sexual dysfunction and spousal communication in couples coping with prostate cancer. Psycho-Oncology 2009; 18: 735-746.

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Smith S, Anderson-Hanley C, Langrock A, et al. The effects of journaling for women with newly diagnosed breast cancer. Psychooncology 2005; 14(12): 1075-1082.

Start Active Stay Active. A report on physical activity for health from the four home countries chief medical officers 2011 http://www.bhfactive.org.uk/userfiles/Documents/startactivestayactive.pdf. Accessed February 2013.

Street AF, Couper JW, Love AW, et al. Psychosocial adaptation in female partners of men with prostate cancer. European Journal of Cancer Care 2010; 19(2): 234-242.

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Campbell LC, Keefe FJ, McKee DC, et al. Prostate cancer in African Americans: Relationship of patient and partner self-efficacy to quality of life. Journal of Pain and Symptom Management 2004; 28(5):433-444.

Campbell LC, Keefe FJ, Scipio C, et al. Facilitating research participation and improving quality of life for African American prostate cancer survivors and their intimate partners. A pilot study of telephone-based coping skills training. Cancer 2007; 109(Suppl 2): 414-424.

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Fletcher BS, Paul SM, Dodd MJ, et al. Prevalence, severity, and impact of symptoms on female family caregivers of patients at the initiation of radiation therapy for prostate cancer. Journal of Clinical Oncology 2008; 26(4): 599-605.

NHS Choices website: http://www.nhs.uk/Livewell/tiredness-and-fatigue/Pages/self-help-energy-tips.aspx. Accessed February 2013.

Fletcher BA, Schumacher KL, Dodd M, et al. Trajectories of fatigue in family caregivers of patients undergoing radiation therapy for prostate cancer. Res Nurse Health 2009; 32(2): 125-139.

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Relationships and family life
Sinfield P, Baker R, Ali S, et al. The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England. European Journal of Cancer Care 2012; 21: 527-534.

Sherman AC and Simonton S. Coping with cancer in the family. The Family Journal: Counselling and Therapy for Couples and Families (2001); 9: 193-200.

Arrington M I. "She's right behind me all the way." An analysis of prostate cancer narratives and changes in family relationships. Journal of Family Communication 2005; 5(2): 141-162.

Mellon S, Northouse L. Family survivorship and quality of life following a cancer diagnosis. Research in Nursing & Health 2001; 24(6): 446-459.

Bruun P, Pedersen B, Osther P et al. Prostate cancer - friend or enemy. Part two, the daughter. International Journal of Urological Nursing 2010; 4(3): 111-117.

Sherman AC and Simonton S. Coping with cancer in the family. The Family Journal: Counselling and Therapy for Couples and Families 2001; 9: 193-200.

McCubbin, HI and Patterson JM (1982) family adaptations to crisis. In McCubbin HI, Cauble A and Patterson J (eds) Family stress, Coping and Social support. Springfield, Ill; Charles Thomas

Chiquelho R, Neves S, Mendes A et al. proFamilies: a psycho-educational multi-family group intervention for cancer patients and their families. Eur J Cancer Care (Engl) 2011; 20(3): 337-344.

Badr H, Taylor CLC. Sexual dysfunction and spousal communication in couples coping with prostate cancer. Psycho-Oncology 2009; 18: 735-746.

Nijboer C, Triemstra M, Templaar R. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer 1999; 86: 577-588.

Williamson G, Shaffer D, Schulz R. Activity restriction and prior relationship history as contributors to mental health outcomes among middle-aged and older spousal caregivers. Health Psychol 1998; 17: 152-162.

Pitceathly C. The Impact of Role and Relationship Changes on Partners of Cancer Patients: Is Patient/Partner Communication A Mediating Factor? Unpublished MSc Thesis, Department of Psychiatry and Behavioural Sciences, Manchester University, UK, 1999.